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December 01, 2007


Jen P

Hey, my first visit to your site. Our whole SPD family can appreciate other people's respect to our sensitivities.

The Hub is a runner/triathelete.


Good luck!!


listen--i think you've said it right here! i've had similar reactions to reading articles on autism and aspergers--sort of shaking my head at the superficial treatment it gets in a few pages or less. but you're right, at least now the ASD diagnosis is given legitimacy. i hope the same will happen with SPD. lord knows the challenges our kids face are real and impact every aspect of theirs, and our, lives.


How come I can't get your blog onto my blog feed reader? [it tells me you don't have a feed? - surely that can't be right?]


Okay, so I'm a little late to this discussion, but I just read the article in Time. And yes, you should write a letter.

I think that hearing from parents who are living this, serves as tremendous reinforcement for why the system for diagnosing SPD needs to be changed and why we need to promote greater awareness and better understanding of this disorder.

Let us know what you decide to do. Post your letter here too? Just a thought...

Lori at Spinning Yellow

Thanks for you suggestions everyone!

Dee - Just b/c I have a lot to say does not mean that I say it eloquently!! Or that it will be good enough to be published!


I am putting Time on my grocery list. I recognize alot of what your are saying in Dallas-he LOVES to be cacooned up in a blanket in front of the fire place and rocks back and forth-I see how it is comforting for him at the end of the day, whether that be a school day, football practice or outside playing, climbing trees,etc. It makes so much sense to me and I am guilt ridden b/c I haven't been onto this a long time ago. Anyway, the first thing I said to myself when you asked for ideas, was to forward this post. You are so very equipped to back up all you have to say. Thanks Lori for educating me.


I think it will take many people like you and the researchers mentioned in the article to give this "disorder" the exposure that it needs. You are already on your way. I didn't find the article itself to be negative; it was the title and the last sentence that were a touch on the negative side. You always say that you have a lot to say-- I know that you will put forth a compelling response.


I knew you would tackle this article when I saw a summary posted on one of the listservs I belong to! As for your letter, I'm with Julie. Back up your anecdotes with research. Use examples that clearly showcase that some of the behaviors associated with SPD go beyond the wide spectrum of "normal". That SPD is more than someone just wanting to wear one brand of socks. That SPD impacts a person's day-to-day functioning, social interactions, etc.

slouching mom

Yep, I agree with Julie. With a bit of editing, the post could easily serve as a fantastic letter.


I'm adding the current issue of Time to my shopping list right now. Thanks.

Julie Pippert

First...I bought Time (Dec 3) off the rack yesterday because of that brain article!!! I don't find the article you mention, and I'd like to read the whole thing because boy do I have a few thoughts about replying to a "is it real?" question if they slanted toward "no."

I think you definitely need to lean heavily on facts. IMO, start with your personal story a little---some of what you did here---and back up the anecdotes with facts.

And I think your ending about what needs to happen is great. In fact, this post is a pretty good letter to the editor.

GL writing the letter and thanks for the heads-up!

Using My Words

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