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May 17, 2009

Comments

Tsholofelo

you can stop this addiction by stipnopg to buy cell phones acac Why don't you just try to be happy with the one you have?Why do you have to have the Best One who is at the moment on the market?Why don't just be happy by having one?

tracey

We don't have OCD over here, but I do understand the school issues and people not understanding that if you don't laugh, at least once in a while, you'll most likely cry instead. Perhaps you could call her and let her know that you meant no offense, but that you have to deal with these issues in the only way you know how. Also, perhaps you could point out that her stories reminded you that people with OCD CAN live fabulous lives. Maybe she sees it as a "sentence" or something that must be "fixed" but there are tons of great adults with OCD issues.

I remind myself that my son's ticks and issues may not be "normal" but that he will most DEFINITELY continue to lead a great life.

Tina@SendChocolate

whoops, comment stripped the link... let's try again. --->https://autismsucksrocks.blogspot.com/2009/06/lookie-we-have-award.html

Tina@SendChocolate

loving your blog. You have an award for excellence at Autism Sucks...come and get it. Be sure to pass it on to those you find worthy.

Tina

Patty

You know, everyone has their opinion, but no one has lived with your son like you have. I too have had people basically diagnose my son after having seen him for an hour or so (most of these people aren't really qualified, either, and neither is the school nurse, however knowledgeable she thinks she is), but they don't have the whole picture.

Whatever it's worth, it sounds to me like you know your child and your instincts sound spot on. It seems to make sense that treating the actual anxiety would be the most important. Anyway, trust your instincts! Don't let how she treated you make you doubt yourself. You definitely know your son better than she does.

Jenn

"I continued to nod and smile and chuckle a bit, in the nervous sort of way you do when things hit close to home."

...am there, almost every day and hate how it comes across. That being said, it sounds as though she has some issues that needs to be dealt with in a better way.

You are doing all that you can, and that is so much more than so many get.

Don't beat yourself up and trust your heart.

the weirdgirl

Go with your gut. Three hours sounds like a lot of time for a dubious result.

On a different note, do you find people with similar kids/families flocking to you now? Like the nurse? Because I'm getting that a lot. Even strangers. I feel like I'm talking about SPD too much, but another boy was just diagnosed in my son's class and friends of ours have their son in OT now... after I'm talking on and on about SPD of course. :)

P.S. I might be going to BlogHer after all! Can't wait to see you!

MommyWithAttitude

Wow -- Scott is so lucky to have parents who can relate in some small way and who are so attentive to his needs. In the end, science only takes us so far and I think you should trust your instincts regarding how to best care for him and help him learn to cope -- it sounds like you're doing an amazing job of that so far.

slouching mom

I think that no one should underestimate how well a parent knows his or her child. Period. You are doing really, really well with him, IMO. Trust your instincts.

Jordan

I'll be curious to hear what you decided after talking to the doctor. I agree with everyone who has said you should trust your intuition. You're doing a great job.

Cyndi

What happened? We need to know. Sorry I didn't have more time to chat today!

Niksmom

Trust your gut. Trust that little voice that's questioning. Is the goal of the study to "get rid of" the behaviors so Scott can "pass" or will it help him develop coping strategies?

IMO, if the study will AT ALL cause Scott to think he's not okay as he is...walk away.

Hugs, my friend.

mrs. chicken

Sounds to me like you are doing exactly what he needs. You know him best, and of course others can see sides you might be blind to, but in the end, you are his mother.

And that counts. For everything. You know?

RuthWells

Best of luck with finding a better solution for Scott. If your gut is telling you that the current study isn't the best fit, go with your gut. It won't fail you.

lora

good luck, I'll be thinking of you.

I'm suspecting (and have always suspected) that my son has some issues with SPD. I definitely do, but thanks to therapy you almost wouldn't know it. Hooray therapy.

I'm also thinking that he is starting to show some OCD tendencies, none of which have anything to do with germs. Again, I'm totally guilty of being diagnosed with OCD, and I always joke about how I'm completely obsessive but I'm too lazy to be compulsive but I joke because I joke about everything. There isn't anything funny about it at all. It's an awful way to live.

I have a constant drive to be compulsive, but I know (again, hooray therapy!) that it would make the problem worse. On top of that, I really don't want to exhibit any compulsive behaviors for my son to model. It took a long time to find a therapist who didn't brush my SPD and O(minus C)D off as quirkiness. I hope you are able to find some answers soon.

If this wasn't already 800 words long, I would tell you all about how horrible it is for anxiety to take the place of compulsory behavior. But it does, and it's bad.

Kyla

It sounds to me that you probably know what is best for Scott and that this study may not be a correct fit. It does sound like his OCD tendencies stem more from anxiety and/or SPD than true unadulterated OCD. Good luck deciding what to do, it can be so difficult!

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